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Cystic Fibrosis: A Guide for Patient and Family
Download Cystic Fibrosis: A Guide for Patient and Family
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Product details
Paperback: 448 pages
Publisher: LWW; Third edition (November 11, 2003)
Language: English
ISBN-10: 0781741521
ISBN-13: 978-0781741521
Product Dimensions:
6.2 x 1.5 x 9.2 inches
Shipping Weight: 1.5 pounds (View shipping rates and policies)
Average Customer Review:
5.0 out of 5 stars
13 customer reviews
Amazon Best Sellers Rank:
#4,054,235 in Books (See Top 100 in Books)
I'm a physician who graduated University of Pittsburgh school of medicine in the early 90s. I now have a son with cystic fibrosis. We travel over four hours to attend a CF clinic with these authors/physicians at Children's Hospital of Pittsburgh.Dr. Jonathan Spahr is an incredible clinician, and I am sad that he took a position at Geisinger Medical Center in Danville PA. It's their gain but our loss. Dr. Spahr is listed as the second author. He gave us a signed copy of this book when it came out. It's just about worn out now. So, there's a chapter written by a nurse who was a legend at Children's Hospital. She has since retired, but her insight is invaluable. Maria, nurse who assumed her duties, is also a very special healthcare provider to our family!
This book should be in the home of anyone with CF, a CF family member or knows someone with the genetic disease. The book is written in an easy to understand format. My husband and I walked into our meeting with our new CF team feeling empowered and able to keep up with what the doctors and other team members discussed. I especially like the sections meant to help older kids, teens and adults with CF, there was something in each chapter to help us prepare for the years to come. CF is hard, you want to go screaming for the hills when you first hear the news but pick up this book to help save your sanity!
good book
informative, good format
i was given this book as a 'free' gift from a drug company that makescystic fibrosis medication. my son diagnosed was diagnosed at age 5 when he had his pre-k physical. yes...it was very useful after my husband and myself could not find any detailed UPTODATE material on cystic fibrosis...thank goodness more helpful information and websites on cf are out now for newly diagnosed patients and their parents...new parents stay away from grandma's old medical guide on cf you will only find very brief and very grim outdated material...ask your medical team for info or search the web for info on cf
My daughter was diagnosed in 1997 at 1 month of age. Fortunately for our family we had the best specialist to help diagnose and treat her condition almost from day 1 of her life. And her doctor is none other than Dr. Orenstein himself (or just Dr. O to us). I can speak from personal knowledge that he is without a doubt the most informative doctor I have ever been around. He truly cares about the children in his care and he takes a proactive role in their health and well-being. His book is considered the CF bible by those in the know in the Pediatric Pulmonary field. As you read this picture a man with a bow tie and sandals explaining this to you. It is very easy to read and understand which when it comes to this disease is very important. I am happy to say that my daughter is almost 12 and thanks to Dr. O and his staff is in excellent health. If you know someone with this disease get them this book or better yet get it for yourself as well. Knowledge and understanding of the disease can really help.
This is a great book. My daughter has CF and this is the book the Doctors gave us. My daughter is treated at one of the top CF centers in the world, so if they use this book only that said a lot to me. I read another before this one and this is by far the best around. Dr O is talking about an update, but is really busy with research. they hope to do another soon. either way it still has lots of valuable info in it. priceless.
Im a teenager and was diagnosed with CF when I was born in 1989.It was recently that I wanted to do some more reading on my disease. I looked through some books and was shocked by what I was reading. As many of you know, the out-of-date books on CF can have some very frightening information, like death and more infections, and etc. It was I discovered this book that I was so much more relaxed about my condition. This book is up-to-date and tells the real facts about this disease. After reading this, my disease doesn't scare me anymore.If you are a teen, like me, I suggest you read thid.If you know anybody with CF, you should read this book or have them read this. Don't let them read those early books on CF with the grim facts...have them read this with the true and helpful facts.
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